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EU-PFF Members
Members Map

You can find our members on the interactive map below. Please click on the link to be redirected to the website of the respective national organisation or have a look at the list of our members below.

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Leaflet

              

Our members

LUNGENFIBROSE FORUM AUSTRIA

Austria (AT)

Association Belge Francophone contra la Fibrose Pulmonaire

Belgium (BE)

BELGISCHE VEREINIGING VOOR LONGFIBROSE

Belgium (BE)

PULMONARY FIBROSIS ASSOCIATION BULGARIA

Bulgaria (BG)

Association Fibroses Pulmonaires France

France (FR)

LUNGENFIBROSE e.V.

Germany (DE)

HELLENIC PULMONARY FIBROSIS ASSOCIATION

Greece (GR)

Tüdőfibrözis Egyesület

Hungary (HU)

IRISH LUNG FIBROSIS ASSOCIATION

Ireland (IE)

FIMARP

Italy (IT)

UNIONE TRAPIANTATI POLMONE DI PADOVA

Italy (IT)

LONGFIBROSE PATIËNTENVERENIGING

The Netherlands (NL)

NATIONAL INTEREST GROUP FOR PULMONARY FIBROSIS

Norway (NO)

IPF POLISH SOCIETY

Poland (PL)

RESPIRA

Portugal (PT)

APFPI

Romania (RO)

ASOCIACIÓN DE FAMILIAS Y ENFERMOS DE FIBROSIS

Spain (ES)

PULMONER HIPERTANSIYON VE SKLERODERMA

TURKEY (TR)

ACTION FOR PULMONARY FIBROSIS

United Kingdom (UK)

Asthma & Lung UK

United Kingdom (UK)

PULMONARY FIBROSIS TRUST

United Kingdom (UK)

Our partners

LUNG FOUNDATION Australia

Australia (AUS)

CANADIAN PULMONARY FIBROSIS FOUNDATION

Canada (CA)

AMA FUORI DAL BUIO

Italy (IT)

RESPIRIAMO INSIEME

Italy (IT)

AMERICAN LUNG ASSOCIATION

USA

PF WARRIORS

USA

PULMONARY FIBROSIS FOUNDATION

USA

CHINESE ORGANIZATION FOR RARE DISORDERS

CHINA

Professional Networks & Policy Partners

The EU-PFF is partnered on a European and global level with a variety of professional networks and policy partners working jointly with them, providing a voice for our patient community and supporting joint efforts in awareness, education, policy and research.

European Lung Foundation

United Kingdom (UK)

EURORDIS

Belgium (BE), France (FA), Spain (ES)

Interstitial Lung Disease, ILD Network

United Kingdom (UK)

MEP Lung Health Group

Central European IPF Network

ERN-LUNG

Germany

European Lung Health Group

European Comission

Health Technology Assessment Stakeholder Network

European Medicines Agency

 Eligible Group Status

Support groups

Across Europe and the world our members have forged relationships with local groups that support patients with pulmonary fibrosis.

Bolton Pulmonary Fibrosis Support Group

Contact: admin@boltonpulmonaryfibrosis.org

United Kingdom (UK)

Breathe Support Network

Contact: breathewithpf@gmail.com

USA

Derby PF Support Group

Contact: billgraham2@hotmail.com

United Kingdom (UK)

Northamptonshire Pulmonary Fibrosis Support Group

Contact: cornishrex2@icloud.com

United Kingdom (UK)

 

Northern Trust Pulmonary Fibrosis Support Group

Contact: calumellie@gmail.com

Northern Ireland

Papworth Hospital Pulmonary Fibrosis Support Group

Contact: ronfish@gothamfamily.co.uk

United Kingdom (UK)

St. George’s ILD Support Group

Contact: hello@ildgroupstgeorges.com

United Kingdom (UK)

Swansea Support Group

Contact: david.rees100@hotmail.co.uk

United Kingdom (UK)