Latest News from EU-PFF
Pulmonary Fibrosis CAB – Report on second meeting available
EU-PFF set up 2 years ago a Pulmonary Fibrosis Community Advisory Board (PF-CAB) as a working...
New President Elected!
The European Pulmonary Fibrosis Federation (EU-PFF) is pleased to announce the appointment of John...
Webinar #6 on “Pulmonary Fibrosis and Cough – causes, treatments and quality of life” now available as a recording
The 6th session of a new series of monthly and free webinars for the Pulmonary Fibrosis community...
Next webinar on May 9 2024 at 7:00 pm CET: “Pulmonary Fibrosis and Cough – causes, treatments and quality of life”
The 6th session of a new series of monthly and free webinars for the pulmonary fibrosis community...
European PF Patient Summit 2024 – Registration is now open!
Registration for the 3rd European Pulmonary Fibrosis Summit is now open! Find out more, choose...
Webinar #5 on “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing” now available as a recording
The fifth session of a new series of monthly and free webinars for the Pulmonary Fibrosis...
The EU-PFF Annual Report 2023 has been published!
Would you like to know which projects we have initiated, implemented and continued in 2023 and...
Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”
What can PF patients do to improve their mental health? This and other questions will be addressed by Prof Brendan Kelly, Professor of Psychiatry at Trinity College Dublin and Consultant Psychiatrist at Tallaght University Hospital, Dublin, in the upcoming session on “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”. The session will be moderated by Liam Galvin, EU-PFF CEO.
News from EU-PFF – Newsletter #2 2023
Dear EU-PFF Community, As the year draws to a close, you will find all the EU-PFF projects,...
“Pulmonary Fibrosis: a supportive guide” – a joint project by the ELF and EU-PFF
Together with the European Lung Foundation (ELF), EU-PFF has developed a guide for pulmonary fibrosis patients and their carers. In its 24 pages and 8 chapters, “Pulmonary Fibrosis: a supportive guide” covers essential aspects such as the disease itself, treatment, supportive care and living well.
BreathingLife 2023 Campaign Report now available
The 2023 EU-PFF BreathingLife Campaign Report (Pulmonary Fibrosis Awareness Month & IPF...
Your support is needed: please fill in our adherence survey and help us spread the word!
Our adherence survey is still running until November 30th. The survey is aimed exclusively at...
Webinar #4 now available as a recording
The fourth session of a new series of monthly and free webinars for the Pulmonary Fibrosis...
Next webinar on Oct 23: Pulmonary Hypertension associated with interstitial lung disease (PH-ILD) – current and future treatments
The 4th session of a new series of monthly and free webinars for the pulmonary fibrosis community...
Webinar #3 now available as a recording
The third webinar of a new series of monthly and free webinars for the Pulmonary Fibrosis...
Next webinar on Sep 25th at 6:45 pm CET: “Key developments in pulmonary fibrosis research – highlights from the 2023 ERS Congress”
The third session of a new series of monthly and free webinars for the pulmonary fibrosis...
POSTPF Study – the Imperial College London is looking for participants!
The Imperial College London is running a qualitative research project (meaning there are no...
Survey on treatment adherence in patients with PF – we need your help!
In the past few months, the Federation has been working on a survey to assess the extent to which pulmonary fibrosis patients adhere to their medications. In order for this survey to yield meaningful results and contribute to better health care for PF patients, we would like to ask you for your help and 20 minutes of your time.
Today is the first day of Pulmonary Fibrosis Awareness Month!
Today kicks off Pulmonary Fibrosis Awareness Month! It takes place every September and aims to raise awareness about Pulmonary Fibrosis, its challenges and the changes it brings to daily life, as well as the burden it places on patients and their loved ones
News from EU-PFF – Newsletter #1 2023
A lot has happened in the field of Pulmonary Fibrosis in the time since our last newsletter in...