“More people die of Pulmonary Fibrosis than leukaemia or ovarian cancer – so why is PF so little known? Let’s work together to raise awareness of this devastating disease.” Steve Jones, EU-PFF President
Despite Pulmonary Fibrosis being such a serious disease affecting 400,000 people and claiming 100,000 lives each year in Europe alone, it is little known to the public.
To raise awareness and thereby bring about real change for PF patients, a collaborative effort is needed: Let’s work together to improve and shape PF treatment and care in the best interest of patients. Let’s drive change together.
How can you support our cause?
We need your active help and participation in raising awareness of PF to shape healthcare policy, treatment, care and research in favour of Pulmonary Fibrosis patients in Europe and beyond.
There are 3 ways to get involved!
Full Membership –
application criteria
To be accepted as a full member of the Association, you will have to fulfill the following criteria:
Check the Criteria
- Not-for-profit organisation
- Based in a country that is part of “geographical Europe” (= EEA member states + Belarus, Russia, Ukraine, Moldova and Baltic states not in EU). Please note: National organisations based in countries not covered by the above definition (e.g. Israel, Turkey, and others) can become associate members only.
- Permanent character (i.e. organisations set up to implement a time-limited project or campaign will not be accepted as members of EU-IPFF)
- Formal registration as an NGO with country wide operations (or across multiple countries) OR in process of becoming a formally registered entity OR with the intention to become formally registered
- Focus on IPF/PF patient advocacy and on supporting IPF /PF patients
- Proven activities on IPF/PF
- The leaders of the organisation are IPF/PF patients themselves or relatives of IPF/PF patients
- Proven willingness and ability to contribute to the work of EU-IPFF
As a full member of EU-PFF you will be invited to attend and vote during the General Assembly and other relevant meetings during the year. You will also contribute to EU-PFFs policy and advocacy activities and will receive regular updates and information on all of our projects.
The member fee is 100 Euros per year.
To apply for full membership, please click here and complete the application form and provide the requested documents (latest annual report and accounts, statutes of your organisation). With your registration, your organisation agrees to contribute to the development of EU-PFF, as well as to share expertise and experience with other EU-PFF members.
All requests for membership are examined on a case-by-case basis. A committee will review the request and reserves the right to accept or reject the same.
After submission, our team will review your application and get back to you in due course. If you have any questions on how to fill out the form or require more information, please feel free to send an email to secretariat@eu-pff.org.
Associate Member – application criteria
To be accepted as an associate member of the Association, you will have to fulfil the following criteria:
Check the Criteria
- Not-for-profit organisation
- Unable to meet all eligibility criteria of full members, e.g. organisations based in a country that is NOT part of “geographical Europe” (= EEA member states + Belarus, Russia, Ukraine, Moldova and Baltic states not in EU).
- Be an individual, partner or supporter as per the above definitions
- Proven activities on IPF/PF or related diseases
- Proven willingness and ability to contribute to the work of EU-IPFF
As an associate member of EU-IPFF you will enjoy the following rights:
- Partners can be invited to attend the General Assembly, at their own expenses.
- All Associate members have the right to be informed by the Federation on its activities (by receiving the EU-IPFF newsletter and other relevant communications);
- All Associate members have the right to have their logo and contact details included in the EU-IPFF website.
Associate members do not have the right to vote.
To apply for membership, please click here and complete the application form. With your registration, your organisation agrees to contribute to the development of EU-PFF, as well as to share expertise and experience with other EU-PFF members.
All requests for membership are examined on a case-by-case basis. A committee will review the request and reserves the right to accept or reject the same.
After submission, our team will review your application and get back to you in due course. If you have any questions on how to fill out the form or require more information, please feel free to send an email to secretariat@eu-pff.org
Become a Sponsor – Sponsorship packages
EU-PFF raises funds for its activities through sponsorships, which enables us to work with our members to fulfill our mission.
Check the Sponsor Packages
Corporate BRONZE Sponsor
Amount: €10,000
- Invitation to specific sessions of the general assembly
- Invitation to participate in individual Community Advisory Boards (CABs)*
- Acknowledgement with logo on the website & recognition on our social media platforms
Corporate SILVER Sponsor
Amount: €15,000
- Invitation to specific sessions of the general assembly
- Invitation to participate in individual Community Advisory Boards (CABs)*
- Acknowledgement with logo on the website & recognition on our social media platforms
- Invitation to 1 meeting per year with the executive board
Corporate GOLD Sponsor
Amount: €35,000
- Invitation to specific sessions of the general assembly.
- Invitation to participate in individual Community Advisory Boards (CABs)*
- Acknowledgement with logo on the website & recognition on our social media platforms
- Invitation to 1 meeting per year with the executive board
- Invitation to quarterly meetings with the EU-PFF Secretariat and the EU-PFF President
Corporate PLATINUM Sponsor
Amount: €50,000
- Invitation to specific sessions of the general assembly
- Invitation to participate in individual Community Advisory Boards (CABs)*
- Acknowledgement with logo on the website & recognition on our social media platforms
- Invitation to 1 meeting per year with the executive board
- Invitation to monthly meetings with the EU-PFF Secretariat and the EU-PFF President
- opportunity to develop a co-creation project with EU-PFF or have 2 extensive meetings with internal company teams
*cost of of holding the CAB to be covered by the sponsor separately
If you are interested in becoming a corporate sponsor, you will have the choice of three different levels with differing benefits and opportunities.
The federation was founded on an ethos of partnership between patients, healthcare professionals and industry and we work closely with all our sponsors and supporters to ultimately benefit our patient community.
The more contribution you provide, the more advantages there are.
For more information, contact EU-PFF secretariat.
EU-PFF recognises that to conduct its ambitious programme and accomplish the missions set out in its statutes, it must enter into partnerships with a variety of external stakeholders, including commercial companies (whether healthcare-focused or not).
Establishing these partnerships must be based on a set of clear rules and principles that ensure that the relationship is mutually beneficial, while protecting EU-PFF’s independence and freedom to conduct activities it deems essential to the realisation of its objectives. To learn more, please have a look at the EU-PFF policy on working with commercial companies.