by lawrence | Dec 12, 2022 | Uncategorized
The Breathing Life 2022 Campaign Report summarises the activities of the European Pulmonary Fibrosis Federation (EU-PFF) for the 2022 #BreathingLife Awareness Campaign. The Breathing Life Awareness Campaign 2022 saw a continuation the Breathing Life 2021 Campaigns...
by lawrence | Dec 6, 2022 | Uncategorized
Sixth and final EU-IPFF webinar leading up to the European Pulmonary Fibrosis Summit in November 2022: “ERS 2022 – key takeaways for patients and carers”, held by Dr Muhunthan Thillai, consultant thoracic physician at the Cambridge Interstitial Lung...
by lawrence | Mar 2, 2022 | Uncategorized
Frontiers in Medicine publishes Multinational European Survey. President of EU-PFF Steve Jones and Jean-Michel Fourrier were co-authors of an article published in August 2021 about an online survey conducted among members of European patient organisations, with a...
by lawrence | Oct 20, 2021 | Uncategorized
Longfibrose Patiëntenvereniging in the Netherlands has produced an information folder The folder contains information about familial pulmonary fibrosis – what this is, how it can be diagnosed, and what it means for family members of familial pulmonary fibrosis...
by lawrence | Sep 2, 2021 | Uncategorized
At present, the natural history of IPF is unpredictable for individual patients. To date, identification and validation of biomarkers for confirming diagnosis, assessing disease severity, prognosis, and response to treatment (theranostic markers), represents one of...
by lawrence | Jun 2, 2021 | Uncategorized
With a view to driving evidence-based policies, the European Pulmonary Fibrosis Federation (EU-PFF) commissioned a first edition of the Benchmarking Report in 2018. Its goal was to measure how European countries, where EU-PFF members are based, were performing against...
