by lawrence | Jan 10, 2024 | Uncategorized
The 5th session of a new series of monthly and free webinars for the pulmonary fibrosis community will take take place on January 31st 2024 at 19:00 CET. In addition to the significant impact of pulmonary fibrosis on patients’ physical health, another important...
by lawrence | Dec 21, 2023 | Uncategorized
Dear EU-PFF Community, As the year draws to a close, you will find all the EU-PFF projects, events and news from the field of pulmonary fibrosis from the second half of the year in this newsletter – along with an editorial by our CEO Liam Galvin and a kind...
by lawrence | Dec 14, 2023 | Uncategorized
Together with the European Lung Foundation (ELF), EU-PFF has developed a guide for pulmonary fibrosis patients and their carers. In its 24 pages and 8 chapters, “Pulmonary Fibrosis: a supportive guide” covers essential aspects such as the disease itself, treatment,...
by lawrence | Dec 1, 2023 | Uncategorized
The 2023 EU-PFF BreathingLife Campaign Report (Pulmonary Fibrosis Awareness Month & IPF Awareness Week) is now available for download. It takes a detailed look at the background of the campaign, its rationale, conception and execution, as well as the collaboration...
by lawrence | Nov 10, 2023 | Uncategorized
Our adherence survey is still running until November 30th. The survey is aimed exclusively at patients who are currently receiving antifibrotic treatment and takes about 20 minutes to complete. If you are a member of a PF patient organisation or similar, please help...
by lawrence | Oct 24, 2023 | Uncategorized
The fourth session of a new series of monthly and free webinars for the Pulmonary Fibrosis community which took place on October 23rd 2023 is now available as a recording. In the session, Dr Lucilla Piccari (Hospital del Mar, Barcelona), Prof David Kiely (University...
