by lawrence | Oct 20, 2021 | Uncategorized
Longfibrose Patiëntenvereniging in the Netherlands has produced an information folder The folder contains information about familial pulmonary fibrosis – what this is, how it can be diagnosed, and what it means for family members of familial pulmonary fibrosis...
by lawrence | Sep 2, 2021 | Uncategorized
At present, the natural history of IPF is unpredictable for individual patients. To date, identification and validation of biomarkers for confirming diagnosis, assessing disease severity, prognosis, and response to treatment (theranostic markers), represents one of...
by lawrence | Jun 2, 2021 | Uncategorized
With a view to driving evidence-based policies, the European Pulmonary Fibrosis Federation (EU-PFF) commissioned a first edition of the Benchmarking Report in 2018. Its goal was to measure how European countries, where EU-PFF members are based, were performing against...
by lawrence | May 2, 2021 | Uncategorized
The experiences of two patients: one waiting for a lung transplant, the other a lung transplant recipient, published in Breathe in March 2021. Lung transplantation is the fourth most common type of solid organ transplant, with over 5000 taking place worldwide in 2015....
by lawrence | Apr 2, 2021 | Uncategorized
In this issue of breathe, CEO of EU-PFF Liam Galvin talks about his life with his wife, Phyl, who passed away from Idiopathic Fulmonary Fibrosis (IPF). The burden of treatment extends beyond the patient and can have a dramatic impact on the person in a caring role....
