Research

The EU-PFF is committed to promoting research into Pulmonary Fibrosis at all levels and by all stakeholders, whether academia, industry, independent researchers or patient organisations.

We work with our partners like the European Reference Network on Rare Respiratory Diseases (ERN-Lung) and the members of our Scientific Advisory Board to act as a catalyst for research and data gathering, so that the impact of the various forms of Pulmonary Fibrosis can be better understood, managed and treated.

As a patient umbrella organisation led by patients we urge patients and their loved ones to participate whenever possible in clinical trials, and have provided the EU-PFF Clinical Trial Finder to ensure that information on all types of trials are available to our community in an easily accessible and understandable way, whilst the EXABO platform allows patients or their families from all over Europe to ask questions and receive answers from the clinical experts working with us at ERN-Lung.

The European IPF Patient Charter sees expanded, but targeted research as a continual vital need for all those with Pulmonary Fibrosis, which is why the latest and most important research is presented on the EU-PFF website.