Members Map
You can find our members on the interactive map below. Please click on the link to be redirected to the website of the respective national organisation or have a look at the list of our members below.
Our members
LUNGENFIBROSE FORUM AUSTRIA
Austria (AT)
Association Belge Francophone contra la Fibrose Pulmonaire
Belgium (BE)
BELGISCHE VEREINIGING VOOR LONGFIBROSE
Belgium (BE)
PULMONARY FIBROSIS ASSOCIATION BULGARIA
Bulgaria (BG)
Association Fibroses Pulmonaires France
France (FR)
LUNGENFIBROSE e.V.
Germany (DE)
HELLENIC PULMONARY FIBROSIS ASSOCIATION
Greece (GR)
Tüdőfibrözis Egyesület
Hungary (HU)
IRISH LUNG FIBROSIS ASSOCIATION
Ireland (IE)
FIMARP
Italy (IT)
UNIONE TRAPIANTATI POLMONE DI PADOVA
Italy (IT)
LONGFIBROSE PATIËNTENVERENIGING
The Netherlands (NL)
NATIONAL INTEREST GROUP FOR PULMONARY FIBROSIS
Norway (NO)
IPF POLISH SOCIETY
Poland (PL)
RESPIRA
Portugal (PT)
APFPI
Romania (RO)
ASOCIACIÓN DE FAMILIAS Y ENFERMOS DE FIBROSIS
Spain (ES)
PULMONER HIPERTANSIYON VE SKLERODERMA
TURKEY (TR)
ACTION FOR PULMONARY FIBROSIS
United Kingdom (UK)
Asthma & Lung UK
United Kingdom (UK)
PULMONARY FIBROSIS TRUST
United Kingdom (UK)
Our partners
LUNG FOUNDATION Australia
Australia (AUS)
CANADIAN PULMONARY FIBROSIS FOUNDATION
Canada (CA)
AMA FUORI DAL BUIO
Italy (IT)
RESPIRIAMO INSIEME
Italy (IT)
AMERICAN LUNG ASSOCIATION
USA
PF WARRIORS
USA
PULMONARY FIBROSIS FOUNDATION
USA
CHINESE ORGANIZATION FOR RARE DISORDERS
CHINA
Professional Networks & Policy Partners
The EU-PFF is partnered on a European and global level with a variety of professional networks and policy partners working jointly with them, providing a voice for our patient community and supporting joint efforts in awareness, education, policy and research.
European Lung Foundation
United Kingdom (UK)
EURORDIS
Belgium (BE), France (FA), Spain (ES)
Interstitial Lung Disease, ILD Network
United Kingdom (UK)
MEP Lung Health Group
Central European IPF Network
ERN-LUNG
Germany
European Lung Health Group
European Comission
Health Technology Assessment Stakeholder Network
European Medicines Agency
Eligible Group Status
Support groups
Across Europe and the world our members have forged relationships with local groups that support patients with pulmonary fibrosis.
Bolton Pulmonary Fibrosis Support Group
Contact: admin@boltonpulmonaryfibrosis.org
United Kingdom (UK)
Northamptonshire Pulmonary Fibrosis Support Group
Contact: cornishrex2@icloud.com
United Kingdom (UK)
Papworth Hospital Pulmonary Fibrosis Support Group
Contact: ronfish@gothamfamily.co.uk
United Kingdom (UK)
