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EU-PFF NEWS

Your support is needed: please fill in our adherence survey and help us spread the word!

10 Nov 2023 - 08:11

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Our adherence survey is still running until November 30th. The survey is aimed exclusively at patients who are currently receiving antifibrotic treatment and takes about 20 minutes to complete.

If you are a member of a PF patient organisation or similar, please help us spread the word and share this information on your social media platforms. Here you can find pre-written social media posts in the survey languages (English, French, German, Greek, Italian, Polish, Romanian and Spanish), including visuals. Thank you for your support! 

About the project

In 2022, EU-PFF started to work on a Europe-wide survey on treatment adherence in patients suffering from pulmonary fibrosis. Its primary objective is to assess the extent to which people adhere to their medications and to investigate motivations and patterns of adherence, including identifying factors, which increase the likelihood of missing a dose of the medication. Based on the results, we will make recommendations to improve support and information for patients with the aim of improving adherence within the patient population.

Amongst other things, the findings of this survey will be used to provide the patient community and EU-PFF with the evidence to make recommendations to other stakeholders, in order to improve adherence within the patient population

Related News & Events

Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”

Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”

What can PF patients do to improve their mental health? This and other questions will be addressed by Prof Brendan Kelly, Professor of Psychiatry at Trinity College Dublin and Consultant Psychiatrist at Tallaght University Hospital, Dublin, in the upcoming session on “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”. The session will be moderated by Liam Galvin, EU-PFF CEO.