POSTPF Study – the Imperial College London is looking for participants! 

13 Sep 2023 - 09:09

Share this

     

The Imperial College London is running a qualitative research project (meaning there are no medications to take) called POSTPF to understand people’s views of screening and early treatment in pulmonary fibrosis to help develop an effective screening programme.

You may be able to participate if you: 

  • Have a diagnosis of pulmonary fibrosis   
  • are the first-degree relative (parent, sibling, child) of a person diagnosed with pulmonary fibrosis
  • have participated in screening for lung cancer  (called lung health check in the UK)
  • are a healthcare professional working with people with pulmonary fibrosis for three or more years

The study involves sharing your views in a one-to-one interview (approximately 60 minutes long) via remote video call (Teams or Zoom). The discussion will be recorded and transcribed, and a face-to-face interview will be available for those living in London.

This research project is funded by the National Institute for Health and Care Research (NIHR). If you are interested in taking part or would like more information about this study, please email postpfstudy@imperial.ac.uk

Thank you for your help!

Related News & Events

Survey on treatment adherence in patients with PF – we need your help!

Survey on treatment adherence in patients with PF – we need your help!

In the past few months, the Federation has been working on a survey to assess the extent to which pulmonary fibrosis patients adhere to their medications. In order for this survey to yield meaningful results and contribute to better health care for PF patients, we would like to ask you for your help and 20 minutes of your time.

Today is the first day of Pulmonary Fibrosis Awareness Month!

Today is the first day of Pulmonary Fibrosis Awareness Month!

Today kicks off Pulmonary Fibrosis Awareness Month! It takes place every September and aims to raise awareness about Pulmonary Fibrosis, its challenges and the changes it brings to daily life, as well as the burden it places on patients and their loved ones