Survey on treatment adherence in patients with PF – we need your help!

We have a favour to ask of you. In the past few months, the Federation has been working on a survey to assess the extent to which pulmonary fibrosis patients adhere to their medications. In order for this survey to yield meaningful results and contribute to better health care for PF patients, we would like to ask you for your help and 20 minutes of your time.

The survey is available in English, French, German, Greek, Italian, Polish, Romanian and Spanish languages and will run from September 6th until November 11th 2023. 

About the project

In 2022, EU-PFF started to work on a Europe-wide survey on treatment adherence in patients suffering from pulmonary fibrosis. Its primary objective is to assess the extent to which people adhere to their medications and to investigate motivations and patterns of adherence, including identifying factors, which increase the likelihood of missing a dose of the medication. Based on the results, we will make recommendations to improve support and information for patients with the aim of improving adherence within the patient population. Amongst other things, the findings of this survey will be used to provide the patient community and EU-PFF with the evidence to make recommendations to other stakeholders, in order to improve adherence within the patient population.