News from EU-PFF – Newsletter #1 2023

25 Jul 2023 - 10:07

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A lot has happened in the field of Pulmonary Fibrosis in the time since our last newsletter in September 2022 – please find the most important news, information and updates from the Federation together with an editorial from our President Steve Jones in the first newsletter of 2023. You can find the newsletter here.

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Survey on treatment adherence in patients with PF – we need your help!

Survey on treatment adherence in patients with PF – we need your help!

In the past few months, the Federation has been working on a survey to assess the extent to which pulmonary fibrosis patients adhere to their medications. In order for this survey to yield meaningful results and contribute to better health care for PF patients, we would like to ask you for your help and 20 minutes of your time.

Today is the first day of Pulmonary Fibrosis Awareness Month!

Today is the first day of Pulmonary Fibrosis Awareness Month!

Today kicks off Pulmonary Fibrosis Awareness Month! It takes place every September and aims to raise awareness about Pulmonary Fibrosis, its challenges and the changes it brings to daily life, as well as the burden it places on patients and their loved ones