When Pulmonary Fibrosis is a hereditary condition

20 Oct 2021 - 09:10

Share this

     

Longfibrose Patiëntenvereniging in the Netherlands has produced an information folder

The folder contains information about familial pulmonary fibrosis – what this is, how it can be diagnosed, and what it means for family members of familial pulmonary fibrosis patients. Most people with pulmonary fibrosis are the only one in their family with the disease. But in about 20% (1 in 5) there are also affected family members. If two or more family members have pulmonary fibrosis, familial pulmonary fibrosis is diagnosed, and there is a need for genetic testing.

Read about the symptoms, needs for genetic testing and regular follow-up if Pulmonary Fibrosis occurs in more family members in the folder, which you can download here.

Related News & Events

Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”

Next webinar on Jan 31 2024 at 7:00 pm CET: “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”

What can PF patients do to improve their mental health? This and other questions will be addressed by Prof Brendan Kelly, Professor of Psychiatry at Trinity College Dublin and Consultant Psychiatrist at Tallaght University Hospital, Dublin, in the upcoming session on “Living with Lung Fibrosis: Optimising Mental Health and Wellbeing”. The session will be moderated by Liam Galvin, EU-PFF CEO.