How treatment burden affects the carer: the experiences of three individuals

02 Apr 2021 - 08:04

Share this

     

In this issue of breathe, CEO of EU-PFF Liam Galvin talks about his life with his wife, Phyl, who passed away from Idiopathic Fulmonary Fibrosis (IPF).

The burden of treatment extends beyond the patient and can have a dramatic impact on the person in a caring role. This article shows how this burden of treatment can affect not only the person with a condition, but also those who care for them.

Read the experiences of three people who have taken on very different carer roles. The first is Lucy Pritchard whose son, Elijah, was born with bronchopulmonary dysplasia (BPD). Pam Carter then discusses her experience of caring for her mother, Eileen, who has bronchiectasis and finally the experience of EU-PFF’s CEO, Liam Galvin.

Please find the full article for download here.

Related News & Events

Today is the first day of Pulmonary Fibrosis Awareness Month!

Today is the first day of Pulmonary Fibrosis Awareness Month!

Today kicks off Pulmonary Fibrosis Awareness Month! It takes place every September and aims to raise awareness about Pulmonary Fibrosis, its challenges and the changes it brings to daily life, as well as the burden it places on patients and their loved ones