We value your privacy

We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. By clicking “I'm good!”, you consent to the use of ALL the cookies. However, you may visit "Cookie Settings" to provide a controlled consent.

Customize Consent Preferences

We use cookies to help you navigate efficiently and perform certain functions. You will find detailed information about all cookies under each consent category below.

The cookies that are categorized as "Necessary" are stored on your browser as they are essential for enabling the basic functionalities of the site. ... 

Always Active

Necessary cookies are required to enable the basic features of this site, such as providing secure log-in or adjusting your consent preferences. These cookies do not store any personally identifiable data.

No cookies to display.

Functional cookies help perform certain functionalities like sharing the content of the website on social media platforms, collecting feedback, and other third-party features.

No cookies to display.

Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics such as the number of visitors, bounce rate, traffic source, etc.

No cookies to display.

Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.

No cookies to display.

Advertisement cookies are used to provide visitors with customized advertisements based on the pages you visited previously and to analyze the effectiveness of the ad campaigns.

No cookies to display.

EU-PFF NEWS

How treatment burden affects the carer: the experiences of three individuals

Back to the News
02 Apr 2021 - 08:04

Share this

     

In this issue of breathe, CEO of EU-PFF Liam Galvin talks about his life with his wife, Phyl, who passed away from Idiopathic Fulmonary Fibrosis (IPF).

The burden of treatment extends beyond the patient and can have a dramatic impact on the person in a caring role. This article shows how this burden of treatment can affect not only the person with a condition, but also those who care for them.

Read the experiences of three people who have taken on very different carer roles. The first is Lucy Pritchard whose son, Elijah, was born with bronchopulmonary dysplasia (BPD). Pam Carter then discusses her experience of caring for her mother, Eileen, who has bronchiectasis and finally the experience of EU-PFF’s CEO, Liam Galvin.

Please find the full article for download here.

Back to the News

Related News & Events

New President Elected!

New President Elected!

Aug 27, 2024

The European Pulmonary Fibrosis Federation (EU-PFF) is pleased to announce the appointment of John...